Giving Voice to Stroke Survivors part 2
Drawn by Hana Grant
story of part 1
Raise the flag
I went alone to the medical policy division of Kochi Prefecture, where I live, to talk about the actual situation. I told them, “Patients with few readily apparent post-stroke sympotoms are also suffering.” They sympathized with me, but since they have little ability to do anything new, they never did anything for me, saying that it was the first time they had heard about it.
I was saddened by the current situation in this country, where our lives are saved by cutting-edge medical care, but the most important thing, the pyscological care is completely ignored.
Participating in CLS Kochi (Community Leaders Summit in Kochi)
I don't know how to create a support network, I don't know who to talk to.
I live in Kochi Prefecture, which is one of the most problematic prefectures in Japan. It was in this context that I attended CLS Kochi, organized by Hideki Ojima, a native of Kochi Prefecture and one of Japan's foremost community marketers. The event is held twice a year. It is a gathering place for IT professionals and entrepreneurs from all over Japan who would not otherwise be able to meet in Kochi.
2023. 5.20 CLS in Kochi
There, I was taught the importance of raising my flag. If you don't raise your flag, people won't notice you and you won't get together with others.
That's right! I'll raise my flag too🚩
Output means to transmit
I was taught the importance of having a blog.
CLS Kochi Community Leaders Summit in Kochi initiator Hideki Ojima. He is a leading expert on community marketing in Japan. He is active as a parallel marketer in various fields. Seen here, he is launching the Community Marketing Promotion Association this year.
The two suggested that I write a note. I learned the importance of communicating from them.
People started to understand me better and the number of supporters started to increase. And it was not only in Kochi Prefecture, my friends connected through CLS supported me. I was able to connect with people, appear on local radio, and call out to patients who are suffering right now. My personal activities became known little by little, and my activities were introduced in the Yomiuri Newspaper.
As a subarachnoid hemorrhage survivor, I told him that I wanted to share my experience with other patients.
My friends Chisa Taniguchi and Hideki Ojima
Group Discussion. The leader of the group was G2-san.
Group photo of about 150 people
Go to Tokyo
I was also able to appear as a guest on "Disease, Region and Community" at the community lab of G2-san, a Tokyo resident whom I met at CLS Kochi. I was able to cross the border to Tokyo to share my thoughts.
designed a graphic representation of the meeting
This year, I was approached by a stroke survivor radio personality and was able to have a radio talk with other stroke survivors.
I also appeared on FM radio in Kochi, talking about my illness and my family.
This phenomenon is called connecting dots. Things started to move.
CLS Kochi will be held on 2024.5.18. This is the third time for me to participate. This time, more than 200 people are expected to attend and the tickets are sold out in 3 hours. I am looking forward to seeing what awaits us this time as well.
Continued in Part 3